Pivot!!! (MS Story Part 1 - Myelin Dinner)

Just the beginning!

On July 4th, 2018, I lost feeling on most of my right side ( minus my Face, which was a plus), my right legs were weak, but nothing I couldn't handle ...or so I thought!

Plus it was 4th of July, My daughters 1st 4th of July and I wasn't going to ruin this memory!

So me being the stubborn ass that I am, I got us ready for the "Fun" day to come! I want to say we left about 11 am to go to a 4th of July celebration for a town nearby on the coast, Food, activities, fun little shops, and of course fireworks!

Than 1:30 or so hit, and I couldn't carry Rylie. "WTF, why can't I carry my daughter?" , 15 min later, I was having trouble walking. " OH Fuck, yup, it's time to go in."

3:30 pm: Waiting at the ER after being dropped off ( by my fiance at the time so he could take our daughter home), I started getting nauseous, which in turn started up my overthinking mind.

I had been having weird symptoms since after I had my daughter: fatigue, numbness in both feet off and on, lower back pain, dull vision. Being a first-time mom, I just thought it was part of it and even asked my Gyno about my numb feet. She explained how epidural side effects could happen up to 2 years after. So when my hands started getting numb off and on, I thought it was the same thing, but this was my entire right side, and I'm weak! WTF is going on? Cancer? I have that in my family. Maybe a cyst in my brain ( My younger sister was born with one). Middle of overthinking, I was called back, unable to walk without help.

I got into the room and sat on the bed, letting the nurse know what was going on while trying not to puke my guts out. I explained everything I had been going through the last year since having my daughter. She took my vitals and walked out of the room.

There I was alone in an ER room waiting for a doctor to come in. Why aren't they doing more? Shouldn't I be getting a test done? I hate being alone in here !!! I ended up calling my best friend to see if she could be with me during this .. of course, she said yes.

It was around 4 when he came in with another nurse that had a cart. He explained, " It seems you are having a severe migraine. These migraines can cause stroke-like symptoms."

I was confused, but he was the doctor, so I went with it.

He explained that he was going to give me nausea medicine and pain medication to help, and it should get me back to normal. He left the room and said the nurse would get me hooked up. Sounds good, nothing to worry about. I'm going to be back to normal, right!???

WRONG!

5 min after he left, another doctor came in asking the nurse to stop giving me anything other than nausea medication. She explained that it was a shift change, and she would be my new doctor. She asked the nurse to send out for a head CT immediately and apologized that I was not tested properly.

She ran a series of tests on me, blood tests, urinalysis, CT scan all in 1 hour period! She came back in and explained I have abnormal white matter in my brain and that they would like to do an MRI of my brain and spine to rule out cancer and other diseases.

That hour was insane, waiting, and doing the one thing you are not supposed to do when they are testing you for things ..... GOOGLE!!! There was so much it could be. I was freaking out calling my fiance and family, keeping them updated in a calm voice while I'm freaking out!!!

She came back in and explained they had three separate neurologists look at my scans.

Can you guess?

"WINNER WINNER MYELIN DINNER"

The doctor had said they all agreed that it looks like I have what is called Multiple Sclerosis, and I needed to see a neurologist and get a spinal tap done to get an official diagnosis, but I have 10-12 lesions on my brain and spinal cord.

So many questions I couldn't even get them out. My doctor explained what it was and that they would be giving me steroids to keep the inflammation down and a referral to a neurologist to set a care plan.

11 pm: Alone finishing up my first of 3 doses of Solumedrol, wondering if that is what it truly is as the first doctor thought it was just a headache.

All I can do is wait .... wait for answers and a plan.

.................To be continued!!!!

Please do not wait until your sick to take care of your only home…your body!

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